Tag: chemotherapy
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New Mutations and a Broken Chromosome
Well, this is not what I thought I would be writing about 208 days after George’s bone marrow transplant. We are supposed to be on the other side of this disease. But his engraftment has been struggling and when we saw Dr. Loren on January 26th, we got some surprising news. George’s early January appointment…
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Day +80
I’ve just spent the last 30 minutes looking for dinner recipes on Pinterest that don’t contain lemon, cream, sugar or tomato sauce because all those things trigger the funky taste in George’s mouth. Do you know what it’s like to be a Greek and not be able to cook with lemon or tomatoes?? OY! And,…
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Day +71
George saw Jackie, the bone marrow transplant guru, on Tuesday, Sept. 13. She said everything was looking good, but really emphasized the importance of eating and getting the proper amount of calories and protein to aid in his recovery. She said in the next coming weeks, the need for proper nutrition will increase because he…
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Day +27
George has been home from the hospital for 10 days now…seems kind of hard to believe! Our days are pretty much the same. We get up and have coffee, which George says doesn’t taste like coffee. Then I take our dog out for a walk before it gets too hot, at about 6:45 or 7:00…
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First Days at Home
George was so happy to sleep in his own bed last night and awaken to his own coffee in his favorite mug! He said it still tasted different – like creamer in dark water, but hopefully his “chemo mouth” will improve with every passing day. At about 7:30 the evening of his homecoming, we received…
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Day +17 – HOME!
24 days after going into the hospital for his bone marrow transplant and 208 days after his first hospital admittance, George was discharged with new donor cells working hard to manufacture new blood cells! He was supposed to be released on day +16 because his counts were recovering so well! But, on Saturday he didn’t…
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We can see the light!
*light at the end of the tunnel: a long-awaited indication that a period of hardship or adversity is nearing an end. On Day +13, I went to visit George and he was lounging in his recliner, tired and still not feeling great. He still had mouth pain, but he said it wasn’t as bad. Not…
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Encouraging news!
Day +12 – the doctor came into George’s room and told him she was happy to see that his white blood cell counts were slowly going up! She said he was where they had hoped he would be at this point in his recovery. Whaat?? That’s fantastic news! I took it as a sign that…
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Day +10 and +11
When I walked into the hospital room Monday afternoon, I was shocked to see George working! He looked exhausted and was ready to knock off for the day, after somehow putting in 8 hours. He moved from the makeshift work station to his bed and I sat in a chair near by. I gave him…
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Day +9
I went to visit George today (Sunday) at around 2:00 and was surprised to find him still in his sleep shirt and in bed. Normally, I would find him dressed and sitting in the recliner. He was fatigued and his mouth was hurting badly. He now has sores in his mouth, which we know is…
Diagnosis: Acute Myeloid Leukemia (AML). A Journey 