Category: Uncategorized
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New Mutations and a Broken Chromosome
Well, this is not what I thought I would be writing about 208 days after George’s bone marrow transplant. We are supposed to be on the other side of this disease. But his engraftment has been struggling and when we saw Dr. Loren on January 26th, we got some surprising news. George’s early January appointment…
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More Info on DLI…(whew)
I was snooping around the internet and checking with Dr. google and found an article that had the following information: After a stem cell transplant, a patient’s chimerism will be measured on a regular basis. It tells doctors how much of your bone marrow is from the donor and should be as near to 100%…
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A Window
George had a visit with Dr. Loren earlier this week. When we were taken from the waiting room back to the cavernous hall of offices, we were told to go to room 6. Well, we did that and we found the door shut and we could hear voices inside the office. George went back to…
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Little Pink Pills
Ok, so maybe they are more like peach or salmon colored. They are called gilteritinib (Xospata) and they are used to as a targeted therapy against the FLT3 mutation in leukemia patients. I talked a little about FLT3 in my previous post, but as a refresher, people who have AML with certain FLT3 mutations often have aggressive…
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One Pink Tennis Ball
On Tuesday of this week, George had his 100 day post-transplant bone marrow biopsy (even though he was only 95 days post-transplant). Everything went well and when he was wheeled back into the recovery room, he was OUT. He slept until it was time to leave. No graham crackers and juice for this guy! Before…
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You Can Breathe Now!
George had an appointment with Dr. Loren yesterday and we left feeling encouraged again! Our first worry was the drop in George’s chimerism percentages. She told us that it was possibly due to the valgocylovir he was taking to treat the CMV. Good news – no CMV had been detected for the past two weeks,…
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Day +60
Wow. It has been 60 days since George’s bone marrow transplant. So far, we have just been chugging along. George is working full time from his home office, getting his magnesium transfusions every day, home infusion team comes twice a week to draw labs, I’m making sure he eats even though he doesn’t want to.…
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Pity Party – Table for One
I try to keep my blog entries positive and informative, perhaps at times even avoiding my true thoughts and feelings. This is not one of those posts. This post is all about me and how I am feeling. How George’s leukemia has affected me. Warning: this may seem petty af in the large scope of…
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Day +43
It’s definitely been a minute since I posted an update. Mainly because things have been pretty uneventful for the past couple of weeks. Which, in some ways is a good thing! I continue to try to find food that George likes to eat. I think we have a good combination for breakfast….these egg frittatas are…
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25 year old male
While I was reading through the visit summary notes from George’s visit with the nurse practitioner last Tuesday, something caught my eye…a bit of information we have been trying to get our hands on since a bone marrow donor was found for George’s transplant. That is, the donor’s sex and age – two things that…
Diagnosis: Acute Myeloid Leukemia (AML). A Journey 