Category: Uncategorized
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A Window
George had a visit with Dr. Loren earlier this week. When we were taken from the waiting room back to the cavernous hall of offices, we were told to go to room 6. Well, we did that and we found the door shut and we could hear voices inside the office. George went back to…
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Little Pink Pills
Ok, so maybe they are more like peach or salmon colored. They are called gilteritinib (Xospata) and they are used to as a targeted therapy against the FLT3 mutation in leukemia patients. I talked a little about FLT3 in my previous post, but as a refresher, people who have AML with certain FLT3 mutations often have aggressive…
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One Pink Tennis Ball
On Tuesday of this week, George had his 100 day post-transplant bone marrow biopsy (even though he was only 95 days post-transplant). Everything went well and when he was wheeled back into the recovery room, he was OUT. He slept until it was time to leave. No graham crackers and juice for this guy! Before…
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You Can Breathe Now!
George had an appointment with Dr. Loren yesterday and we left feeling encouraged again! Our first worry was the drop in George’s chimerism percentages. She told us that it was possibly due to the valgocylovir he was taking to treat the CMV. Good news – no CMV had been detected for the past two weeks,…
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Day +60
Wow. It has been 60 days since George’s bone marrow transplant. So far, we have just been chugging along. George is working full time from his home office, getting his magnesium transfusions every day, home infusion team comes twice a week to draw labs, I’m making sure he eats even though he doesn’t want to.…
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Day +43
It’s definitely been a minute since I posted an update. Mainly because things have been pretty uneventful for the past couple of weeks. Which, in some ways is a good thing! I continue to try to find food that George likes to eat. I think we have a good combination for breakfast….these egg frittatas are…
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25 year old male
While I was reading through the visit summary notes from George’s visit with the nurse practitioner last Tuesday, something caught my eye…a bit of information we have been trying to get our hands on since a bone marrow donor was found for George’s transplant. That is, the donor’s sex and age – two things that…
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Day +27
George has been home from the hospital for 10 days now…seems kind of hard to believe! Our days are pretty much the same. We get up and have coffee, which George says doesn’t taste like coffee. Then I take our dog out for a walk before it gets too hot, at about 6:45 or 7:00…
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First Days at Home
George was so happy to sleep in his own bed last night and awaken to his own coffee in his favorite mug! He said it still tasted different – like creamer in dark water, but hopefully his “chemo mouth” will improve with every passing day. At about 7:30 the evening of his homecoming, we received…
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We can see the light!
*light at the end of the tunnel: a long-awaited indication that a period of hardship or adversity is nearing an end. On Day +13, I went to visit George and he was lounging in his recliner, tired and still not feeling great. He still had mouth pain, but he said it wasn’t as bad. Not…
Diagnosis: Acute Myeloid Leukemia (AML). A Journey 