Tag: AML
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Clinical Trial – Week 4
This week has been a tough one. It started pretty well…on Thursday, the 9th, the doctor said George’s inflammation markers were going down and he thought that perhaps the CRS has peaked. That was good news! Friday, George started having gastrointestinal issues – bloating, gas and occasional diarrhea. Saturday is when things started to really…
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Clinical Trial Date Set
This past couple of weeks has been a busy time for us. George started his chemo infusions on Sept 25th and finished them up on Oct 3. He was also taking the oral chemo pill venetoclax. During this time, he had an echocardiogram and an electrocardiogram to clear him for the clinical trial. Because his…
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Bone Marrow Biopsy #9 and Pre-Donor Evaluation
George had his bone marrow biopsy on Wednesday, Sept 13 and for the first time, we had to wait almost two hours for him to be taken back! Poor thing was starving, as he couldn’t eat. As always, everything went well and he was ready for a snack when he was rolled back to recovery…
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Back in the Hospital with Pneumonia
After more than a week of coughing without ceasing to the point of gagging and retching, George finally decided something needs to be done NOW. Of course, we had messaged his team at UPenn and they didn’t seem particularly concerned. Had they seen George’s extreme exhaustion, his inability to walk to the front door or…
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The Dilemma
During the first hospitalization, George had the bone marrow biopsy to get the initial diagnosis of AML and then we had to wait a couple more weeks for the “molecular” data to come back. That would show which actual mutations on his chromosomes were linked to the onset of his leukemia. The news we got…
Diagnosis: Acute Myeloid Leukemia (AML). A Journey 