Category: leukemia
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Day +17 – HOME!
24 days after going into the hospital for his bone marrow transplant and 208 days after his first hospital admittance, George was discharged with new donor cells working hard to manufacture new blood cells! He was supposed to be released on day +16 because his counts were recovering so well! But, on Saturday he didn’t […]
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Friday the 13th
For the last few days, concern has been increasing over the fact that George’s white blood cell count hasn’t started going back up after this last round of chemo. Dr Ghimire expressed his concern on the phone when he called earlier this week to discuss the results of the blood work George had on the […]
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Bone Marrow Transplant Consult #2
Yesterday, we drove out to UPenn in Philadelphia to meet with Dr. Loren. We hadn’t seen her since March and we were hungry for information and for some kind of timeline for the transplant. Well, we did get a lot of information. Some of it good, and some of it rather daunting. GOOD NEWS: Dr. […]
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Reception into the Orthodox Church
This past weekend was one of joy for us. George was received into the Orthodox Church, something I had been praying for and hoping for years! I think the leukemia diagnosis nudged him in that direction – having a spiritual foundation and home base is a comfort when facing such a challenge as cancer and […]
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The joy of normalcy
In a previous post, I wrote that George had finished up his round of chemo injections and we were happy that we didn’t have to drive the 50 minutes to Camden every day anymore. Then I remembered that he would have to have blood drawn regularly so, maybe we were kidding ourselves. Well, the good […]
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Wait, what? In search of a bone marrow donor…
After meeting with Dr. Loren at UPenn in March for a bone marrow transplant consultation, we got instructions to get George’s sister tested to see if she is a match for George. Jasmine, the HLA typing Coordinator, sent a test kit out to Liliane and, after searching high and low for an establishment that would […]
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Consolidation Chemo – round 2
As requested by Dr. Ghimire’s office, George started his second round of chemotherapy on Thursday, the day after his lumbar puncture. This was going to be a different experience from his induction chemo and his last round of chemo, both of which were administered while he was hospitalized. This time, his chemo will be administered […]
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This Is Spinal Tap
Two days after getting his bone marrow biopsy, George was back at UPenn for a lumbar puncture. The traffic was hell going into the University City area, but I’m starting to think that is just the norm. There is SO much there – The University of Pennsylvania, the hospitals, the research centers, CHOP (Children’s Hospital […]
Diagnosis: Acute Myeloid Leukemia (AML). A Journey 